SALT LAKE CITY – Patient advocacy and research group The Myeloma Crowd, a division of the nonprofit CrowdCare Foundation, has launched an online tool to help multiple myeloma patients find their best myeloma treatments and accelerate research toward a cure. Using the tool, called HealthTree, patients can track their myeloma lab values across all treatments, see personally relevant treatment options they could consider, view collective reports of anonymized data, find personally relevant clinical trials, and contribute de-identified data to be aggregated for review by myeloma researchers and the patient community. “The health care industry still acts as if the Internet doesn’t exist with every patient having to reinvent the wheel to learn about their disease,” said Jenny Ahlstrom, developer of the tool, in a statement. “HealthTree gives the 80% of patients not seeing a myeloma specialist access to information from the experts that they can share with their doctor. Patients could be living years longer with today’s wide range of therapies if they received the right treatment at the right time.” Using machine learning, HealthTree can identify patterns that could inform treatment decisions, improve patient outcomes and advance a cure for myeloma. Ahlstrom and her husband and co-developer, Paul Ahlstrom, plan to expand HealthTree to other types of cancer and terminal diseases in the future.
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