CAMBRIDGE, Mass. – PatientsLikeMe has partnered with biotechnology company Shire Inc. to develop a digital health learning system to support people living with rare diseases and their caregivers. “Our work with Shire will give patients, caregivers and researchers access to new forms of data that cam improve our understanding of the human condition, and help Shire align their operations behind patient-driven directives,” said Ben Heywood, president and co-founder of the PatientsLikeMe health network. The companies will create digitally enabled research communities and tools to help those with rare diseases track and share their experiences with others living with the same conditions. It will also connect patient-generated health data with genotype and physiological data to enable research outcomes that better meet the needs of patients. Heywood said the collaboration will give patients and caregivers new ways to understand their symptoms, treatment impacts and quality of life over time, and new insights into how to improve their outcomes. “It will also help companies advance research for a deeper and more collaborative understanding of health and disease,” said Heywood.
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