BOSTON – More than 120,000 people have registered to participate in the National Institute of Health’s All of Us Research Program since it launched in May, according to Dr. Dara Richardson-Heron, chief engagement officer of the program.
“Of those registered, more than 65,000 have completed our full protocol,” said Richardson-Heron at the recent Connected Health Conference in Boston. “That’s a big deal.”
The All of Us Research Program seeks to advance precision medicine by building a national research cohort of 1 million or more participants from diverse communities across the United States to contribute their physical, genomic and electronic health record data. In addition to providing blood and urine samples, participants commit to the program for 10 years and will allow their information to be collected through wearable devices, physical measurements and surveys, with the ultimate goal of accelerating research and improving health.
Ultimately, All of Us will serve as a national research resource to inform thousands of studies, covering a wide variety of health conditions, Richardson-Heron said. Researchers will use data from the program to learn more about how individual differences in lifestyle, environment and biological makeup can influence health and disease.
“We hope our findings will drive more positive outcomes for all, including populations who have historically been underrepresented in biomedical research,” she said.
While the program is currently still in the enrollment stage, Richardson-Heron said plans are on track for the coming months to keep All of Us moving forward, including the beta testing of a browser for aggregated data later this year, an analysis tool for researchers and other features to enhance participants’ online experience.
“Hopefully, All of Us will create a health care system that finds the right treatment for the right person at the right time—every time,” said Richardson-Heron. “Our research findings will allow for more effective, precise care and improve the patient-provider relationship. It will change the face of health care as we know it.”