EAST HANOVER, N.J. – Novartis has launched a mobile research study for people with multiple sclerosis that collects data via their smartphone, without the need for clinic visits.
The elevateMS study is designed to collect sensor-based data from physical tasks and symptoms. It aims to improve understanding of the daily challenges patients with MS can have and to uncover new potential measurements of treatment effectiveness through real-time data collection from participants in their everyday life.
Developed in partnership with Sage Bionetworks, the study uses a mobile app that was built on the Apple ResearchKit platform.
“With the elevateMS app, study participants can frequently document their symptoms in a personal health story,” said Dr. Stanley Cohan, medical director of the Providence Multiple Sclerosis Center and the study’s scientific advisor, said in a statement. “In turn, this data may provide researchers with new ways to look at disease progression and treatment effectiveness.”
The elevateMS study mobile app was designed with input from patients, neurologists and advocates. Patients commented on the app’s user interface, what the study should measure, and how the app should track patient activity and disease symptoms.
Using smartphones, the elevateMS app captures participant responses to questionnaires, passive and active sensor-based movement data, and functional performance tasks completed by the participants. Participants can use the app to view how their data changes over time, and researchers will be able to use data from all participants to understand what it is like to live with MS.