BOSTON – Boston Children’s Hospital and Duke Health System have developed an app to help families organize and monitor their children’s health.
The Caremap app enables family caregivers to securely store vital medical information and share it with health professionals as part of their care or in an emergency. Families can also use the app to track health metrics important to them and gain insights to inform their child’s care.
“We wanted to provide a trusted and much-needed resource that would harness the patient voice and family perspective,” said Dr. Michael Docktor, the Caremap app clinical lead and clinical director of innovation at Boston Children’s Innovation & Digital Health Accelerator, where the app was developed, in a statement. “The ability to track custom parameters provides an important window into patients’ lives that is not captured in the electronic health record, but is important to families.”
The app was built using the Apple CareKit framework and will benefit children with complex medical needs. Using Caremap, families can give medical providers critical information such as allergies, medical equipment they rely on and emergency action plans, by showing them the app or sending a PDF snapshot via email.
Day to day, families can track parameters like exercise, mood, pain and sleep, as well as add custom metrics of their choice, like school attendance or temper tantrums. They can view the data in colorful graphs to see trends and patterns.
Caremap uses the Connect module for caregivers to share data and communications with the patient’s care team, including doctors, other health care professionals, family and other loved ones.
“Effectively managing communication between numerous providers who care for a child with medical complexity can be a full time job for parents,” said Dr. David Ming, Caremap clinical and director of Duke Children’s Complex Care Service, in a statement. “The priority with Caremap is not only to organize relevant clinical details, but also to highlight the overall care goals. These features make this a particularly exciting opportunity to improve care for children with medical complexity.”
The development team at Boston Children’s and Duke plans to add more functions over time. Their first goal is to connect Caremap to Cerner and Epic, the two largest electronic medical systems, via the FHIR interoperability interface. Eventually, they plan to add secure cloud connectivity.